Living OUR Love Song: Update on Buddy and BOR Syndrome

Thursday, February 19, 2009

Update on Buddy and BOR Syndrome

So we went to the audiologist and they thought they found something new with buddy's hearing loss and wanted an ent to look into it. So we got a report and headed to the Ent. Well, we got there he was like i would like another hearing test to compair them. So, he looked in Buddy's ears and cleaned them out. They had alot of wax and the tubes from 3 years ago were just sitting in the way. So he took them out. No fluid at all in either. Thats it he said have the Audiologist fax me the new text. He didn't even act like he cared at all. Its just so frustrating that they cant just give us a good answer. Every test is Diffrent. I understand Buddy has a hearing loss. Im not denying what they have found he has Bor Syndrome. I glad he doesn't have it that bad. I just want to know why we get different answers every Test we get done.

If you Know anyone with the BOR Syndrome or a Doctor who is working on this please HELP!! Thanks,

Buddy goes back to the audiologist on Monday so watch for an Update then.

Im 30 weeks today and I go to the doctor. Alot of people i dont see are asking for a picture so i will take one later today!!

This is Kylei on her First Kindergarten Field Trip She was so excited.

Buddy went to a cheap place to get a hair cut Darcey was on maternity leave and it was way to long in the back so Trever fixed it.

These are my wonderful Kids.

Notice Buddy has his hearing aids he is doing so much better with keeping them in. Good JOb Buddy I love you both!!

8 comments:

jonisill said...: Your looking good. I hope you get everything figured out with Buddy. That's frustrating. FYI- I spent $50 making the chore board. (Thats for the board, the magnets, everything) But it has been worth it. The kids have been So much better since we started it.; February 20, 2009 at 6:53 AM
leah said...: I found your blog on google- we don't have BOR (that we know of), but there is a hearing loss group at listen-up (a yahoo group) and there might be a family on there that has BOR.; February 20, 2009 at 9:15 AM
leah said...: I'm terrible at figuring out how to respond to people, lol. My 18 month old has a moderate rising to mild hearing loss in his better ear (we have a second blog at, http://saywhatmunchkins.blogspot.com/).

The yahoo group is at http://www.listen-up.org/ (the first link). It is for parents of children with hearing loss, and there are a variety of causes, so there might be someone familiar with BOR.; February 20, 2009 at 11:39 AM
laceyjo said...: You are so adorable when you are pregnant! I hope you figure out what is wrong with Buddy. He is such an angel and doll.

xoxo; February 21, 2009 at 7:34 PM
The Jones Family said...: Hey, i don't know of anyone having that but if i hear of anything i will for sure let you know. You look so cute pregnant. Your kids are so adorable in that pic love it!!; February 23, 2009 at 12:45 PM
The Johnson's said...: That is so frustrating with Buddy. I'm so sorry. I hope you get a straight answer one of these days. I can't beleive you only have a couple more months til the baby comes! If you need anything from BRUs let me know :) P.S. Love the pic of Clay on the previous post..I'll have to show him! LOL!; February 25, 2009 at 9:39 PM
Alisha said...: I found your blog!! Woo hoo!! Mine is geasher.blogspot.com. I hope you don't care if I add a link to yours from mine!!

Congrats again on your pregnancy! I can't wait to keep in better touch with you now. I sure haven't been very good at that...have I? ♥ ya!; March 3, 2009 at 7:35 PM
Dannah Blumenau said...: Hi! I found your blog while doing a google blog search for BOR Syndrome. My father, myself, and my three month old son, Elliot all have BOR Syndrome. I'd love to exchange emails. I can be reached at dannahlea2001 at yahoo.com. Hope to hear from you!; August 1, 2009 at 5:07 AM